Data

Current Publically Available Data Reported by the NHBCP:

 

Data Requests
Requests for data from the NHBCP must be submitted through Health Statistics and Data Management, Division of Public Health Services, Department of Health and Human Services - http://www.dhhs.nh.gov/dphs/hsdm/requests.htm

Birth Condition Occurrence
Data reported by the NH Birth Conditions Program is based on confirmed cases of a birth condition. An infant or fetus may have more than one condition and is counted as a separate "case" for each condition.

  • Case Definition
    Data for birth conditions occurring cases meet the following criteria:
  • *  Mother is a New Hampshire resident at time of pregnancy outcome.
  • *  Data collected for live born, stillborn fetus, or pregnancy termination resulting in an autopsy. 
  • *  The infant or fetus had a structural birth defect that meets diagnostic criteria for 1 or more of the 46 conditions      
        tracked by the NHBCP.
  • *  Diagnosis was made before or at the time the infant reached two years of age.

 

Data Sources
Hospital discharge data, birth certificates, post-natal care clinics, pathology reports.

New Hampshire birth conditions data are based upon information obtained as part of an active surveillance system using Centers for Disease Control and Prevention (CDC), National Birth Defects Prevention Network (NBDPN) specified case definitions and trained medical record reviewers for data abstraction. The NBDPN 6-digit code of reportable congenital anomalies based on standard ICD-9 coding is utilized as the standard for reporting data into the surveillance system.

All resident birth data in this report are based upon information provided to the New Hampshire Department of Health and Human Services under specific legislative authority. The data reported represent the best estimate number or rate of events in the state. Any release of personal identifying information is conditioned upon such information remaining confidential. The unauthorized disclosure of any confidential medical or scientific data is a misdemeanor under New Hampshire law.

Data Limitations

  • Due to the small numbers of birth defects, caution is advised in the interpretation of conclusions from statistical analyses.
  • Misclassification of birth defects may occur through coding errors or vague diagnoses. Quality control measures such as careful abstraction of the medical record minimize this error.
  • As medical diagnostic technology has improved, many prenatal and postnatal tests are now performed outside the traditional hospital setting. Prenatal diagnosis enables physicians to identify some birth defects well before the expected date of delivery, and offers women alternatives in the management of their affected pregnancies. These decisions have significant implications for monitoring birth conditions, particularly in the case of pregnancies that are electively terminated. Fetuses that are electively terminated do not routinely receive pathological/diagnostic assessment; therefore it is possible that many birth conditions that occur and are electively terminated are missed.
  • Some New Hampshire resident deliveries and diagnoses that occur out of state may be missed by this surveillance system, particularly if they do not receive health care in the State of NH before the child is 2 years of age.

Rates
When calculating rates among live born infants and stillbirths, the denominator used is total births. When terminations are included, the total number of terminations for a birth condition is added to the denominator. The general consensus among birth conditions investigators is that the term "prevalence" should be used to describe the rate over time.

* Please contact the NHBCP with any questions regarding comparison of birth conditions data on this website.

Data Confidentiality
The NH Birth Conditions Program (NHBCP) has adopted the NH Department of Health and Human Services, Maternal and Child Health Section Data Confidentiality and Security Policy and will maintain strict standards to protect confidential data.

Free Download Click here for a printable fact sheet about the impact and prevention
of birth conditions in New Hampshire.